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Who we are

Patient in Focus (www.patientinfocus.org) is an international, nonprofit disease neutral patient organization based in Denmark. Driven by patients for patients.

Patient in Focus improves the living conditions for patients through knowledge, tools and education so that patients can lead a life of quality despite illness and disability.

Patient in Focus helps other patients get involved with patient engagement, research etc. and thereby give the professionals the knowledge they lack.

Our main website address is: https://patientinfocus.org

Data protection and personal data

Information about the processing of personal data about you pursuant to the Personal Data Act §28, as well as Cookie and privacy policy.

Patient in Focus processes personal information about you when you contact us via email, letter or telephone. We also process personal information about you if you receive a message from a board member.

If you have a position in the Patient in Focus organization or are employed by us, we process your personal information electronically. We process personal information in relation to applicants for positions or employees in order to be able to manage your employment relationship or to be able to establish an employment relationship.

For the processing of your personal data upon application or employment in Patient in Focus, the Personal Data Act §6 para. 1 pkt. 2 and §7 para. 3.

In connection with the Personal Data Act §28, we must inform you that we process personal data electronically, which is necessary in order to process your inquiry, your affiliation or the collaboration with you. This entails that we must process your personal data.

Patient in Focus data controllers and data processors are:

Data controller:

Patient in Focus Data processor:

Charlotta Nørgaard
Lisbeth Oxholm Snede

Rugvænget 28
DK-8653 Them
Phone: +45 30660266

Mailto: [email protected]

Rugvænget 28
DK-8653 Them
Phone: +45 30660266 

The purpose of processing your personal data is to be able to take care of your interests in accordance with the organization’s articles of association and purpose, to be able to communicate with you throughout our collaboration and also be able to carry out the administrative work that is necessary in Patient in Focus´ work. In addition, Patient in Focus has chosen to use your consent as a basis for the processing of your personal data.

This happens when you choose to use the website, want to do volunteer work, participate in projects or establish a membership. 

Patient in Focus does not pass on any of your information to a third party without your permission, unless we are obliged to do so in accordance with Danish law. Personal information about you will be deleted when we no longer have a purpose for processing it. You can withdraw your consent at any time without prejudice to the lawfulness of the processing, which is based on the consent before the withdrawal.

You must write to [email protected] if you wish to delete the given consent ahead of time. Patient in Focus deletes your consent after the end of the project period or after a maximum of five (5) years. 

According to the Personal Data Act, you have the right to insight into and rectification or deletion of personal data or restriction of processing of information about you. If you do not want Patient in Focus to process the personal information about you that is necessary for us to manage your affiliation with the organization, collaborate on projects or communicate with us, then the result may be that you cannot maintain your affiliation and our cooperative relationship must end. 

You can submit a complaint to us via [email protected]  and/or the Danish Data Protection Agency [email protected] if you find that Patient in Focus’ processing of your information is incorrect.

Cookies and privacy policy

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